Furthermore, the information in the recommendations should be consistent, unambiguous and credible . Implement Sci. 2015;31(3):190–6. She was actively involved in all steps of the review and writing of this paper. The information should be made relevant for the target audience, patients in this case. 1). Based on a survey among professionals, McGuire et al. Key factors of success were a dissemination plan, written at the start of the recommendation development process, involvement of patients in this development process and the use of a combination of traditional and innovative dissemination tools. Patients as research partners in responsive research. further recommend the use of familiar words of one or two syllables, the use of active voice in the present tense and the use of short sentences of 15 words or less, and short paragraphs of ten lines or less . The initial search revealed 3753 unique publications. Hoens AM, Reid WD, Camp PG. JABFM. Patient partnership in decision-making on biomedical research: changing the network. volume 11, Article number: 82 (2015) The GIN toolkit suggests (1) informing patients about their role before participating, (2) clarifying expectations about the specific role of the patients and the time commitment required, (3) giving a training in advance to prepare patients for their assigned role and (4) supporting patients during the process . Implementation of the osteoarthritis clinical guideline: results of a cluster randomized trial in primary care. Gagliardi AR, Brouwers MC, Palda VA, Lemieux-Charles L, Grimshaw JM. Training for professionals should however also get attention since professionals also have to learn how to work effectively together with patients . When different sources and tools are applied over a longer period, the dissemination can be described as most adequate because information will last longer when seen and heard more often . What is dissemination? 2012;27(10):1361–7. This has been the result of our inclusion criteria. The selection of patients may be challenging. Thesis. Knapp JF, Simon SD, Sharma V. Does active dissemination of evidence result in faster knowledge transfer than passive diffusion? Ideally, a heterogeneous group of patients with different educational levels  should be involved in order to communicate to a diversity of patients [22, 23, 37]. We found qualitative studies, surveys, descriptive studies, opinions, editorials and conference abstracts. This systematic literature review (SLR) followed the process recommended by the Centre of Reviews and Dissemination . A lay version enables patients to better understand the goals of treatment, the different treatment options and the benefits and risks of each option. The group followed the EULAR Standardized Operational Procedures  and met twice. doi:10.1136/bmjqs-2013-002293.101. First, the message should be customised to the target audience. Boulet et al. TA wrote the research proposal of which the systematic review is part of, was intellectually engaged in the whole process and supervised the project. However, a study of Snyman suggests that just making a lay version is not enough to achieve this goal because most printed health messages do not transfer information successfully to target audiences . Involvement of patients, not only in the dissemination of recommendation but also in the development of recommendations, is needed. Several authors stress, based on their own experiences and ideas [1, 22–25] or a qualitative study among professionals , the importance of the involvement of patients or patient organisations in the design and development of recommendations to enhance the dissemination of recommendations in health care and to local patient organisations. The level of evidence was categorised according to the design characteristics of available studies using an established hierarchy  (see Table 1). CAS 2011;64(4):380–2. | Knowledge brokering: an innovative model for supporting evidence-informed practice in respiratory care. Strategies for disseminating recommendations or guidelines to patients: a systematic review. Duplicate articles were excluded. Can Respir J. De Wit M. Patient participation in rheumatology research. Pediatr Emerg Care. http://webarchive.nationalarchives.gov.uk/2009120222436/http://nice/org.uk. Knowledge brokers can also be used. The GIN supports patient involvement in guideline activities around the world. The network members are alerted when new recommendations or patient versions are published. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. Adaptation of the recommendations to the local situation may be needed . The aim of this systematic literature review was to assess what dissemination strategies are feasible to inform and educate patients about recommendations (also known as guidelines). National patient organisations should, according to the GIN toolkit, disseminate the recommendations in their own countries. This may be a result of the problems professionals expressed on patient involvement in the development of recommendations . We thank the members of the EULAR Task Force for their comments on the preliminary results of this systematic literature review and their suggestions for making the search better. One way to empower patients to make more informed choices is the development and dissemination of patient or lay versions of the recommendations. For sustainable adaptation, more efforts are needed . There are different ways that patients or patient organisations can be involved in making a lay version . The first suggestion is the use of selection criteria in choosing patient representatives . 2013;144(2):381–9. Thesis VU University Amsterdam. G-I-N Public Toolkit. CAS 2010;6 Suppl 4:A10. 2013;20(4):271–4. The search was performed in February 2016 in PubMed, Ebsco/PsycINFO, Ebsco/CINAHL and Embase. European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects. Get the latest research from NIH: https://www.nih.gov/coronavirus. Jae Jeong H, Pham JC, Kim M, Engineer C, Pronovost P. Major cultural-compatibility complex: considerations on cross-cultural dissemination of patient safety programmes. Springer Nature. . 2003 Sep 17;290(11):1454-5; author reply 1456. doi: 10.1001/jama.290.11.1454-c. JAMA. suggest to disseminate recommendations by providing automatic updates of new information and resources for patients who have signed in, by interactive internet-based lectures and by developing a variety of learning tools like posters, summaries, handouts, pocket cards and slide sets for patients . The aim of this systematic literature review was to assess what dissemination strategies are feasible to inform and educate patients about recommendations (also known as guidelines). 2008;73(3):526–35. Implement Sci. Dissemination and evaluation of the EULAR recommendations for the role of the nurse in the management of chronic inflammatory arthritis. A review protocol was developed by KS and JK, based on the Preferred Reporting Items for Systematic Reviews and Meta-Analysis (PRISMA) statement . We used the Quality Assessment Tool for Qualitative Studies to assess the methodological quality of the qualitative studies  (see Additional file 3). Effective dissemination relies on the use of varied channels—e.g., publications and reports, Web sites and other electronic communications, meetings and conferences, person-to-person communications, formal collaborations or information networks. Shared decision making: a model for clinical practice. Although patients are more and more involved in the development of guidelines [3, 45] (for professionals), their involvement in the dissemination process (towards patients and professionals) is still less common. PubMed PubMed Schipper K, Abma TA, van Zadelhoff E, van de Griendt J, Nierse C, Widdershoven GAM. Eccles MP, Grimshaw JM, Shekelle P, Schünemann HJ, Woolf S. Developing clinical practice guidelines: target audiences, identifying topics for guidelines, guideline group composition and functioning and conflicts of interest. Full text of the nature of these studies, opinions, editorials and conference abstracts low level of of... 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